Tag Archives: Centre Escala Iris

June 2014, a month on the road, full of solidarity and making new friends

June was a very intense month for us. We participated in three different events to make people aware of our initiative and to raise funds to continue helping Àlex. It was an intense month, with lots of kilometres covered and lots of hours spent but it has been worthy. Because of all the money we have collected for Àlex and because we have spread the message.

FirAnoia Igualada

We started June 7th and 8th weekend at Cervera (Lleida) a town that this year has been named Ciutat Gegantera 2014 de Catalunya (Catalonia’s 2014 city of giants) and hosted giants and “big heads” carriers and organizations. Thanks to the town council we could set our stand in two different places in that beautiful and historic city. On Saturday we set camp at Sant Miquels’s Square, in the center of the city, and on Sunday morning at Sindicat’s Square.

Cervera-Ciutat Gegantera

As this was our second time out of Igualada we were able to make our initiative known to many people who were not aware of anything about our association. This is why we are so happy, we had an amazing reception in Cervera, the citizens and the visitors where very kind. And we could enjoy Catalan Popular Culture and all the events that took place.

Cervera-Ciutat Gegantera

The next weekend was June 14th and 15th and Fira d’Entitats was held. It was part of FirAnoia, organized by Fira d’Igualada, our city’s most popular fair. Thousands of people come to visit this fair, which is located in Igualada’s historical center. That is why this fair is a cultural model in the city. Thanks to the Fira d’Entitats de l’Ajuntament d’Igualada we were able to set our stand at the nonprofit local entities area.

As it was a local fair we met with old friends and contributors who had helped us before, but we also met new people. One of the people we met and had the pleasure to talk to was an Anoiadiari.cat newspaper team member, who mentioned us in his article on June 20th (in Catalan). Thank you very much for helping us diffuse our initiative.

The last event we took part in was “El Troc”, Igualada’s exchange market, held on June 21st at the Museu de la Pell. Although we had less people than we expected, we were able to make our initiative known to new people. So we were very happy.

Nash Alex Sasha - TROC

We are glad to have been in these three events. Thanks to the funds we had raised we can continue helping Àlex. And most importantly we explained our initiative to many people and we hope this will help us in the future.

Since the first party we made to raise funds in “La Bastida” (Igualada) that had took place on June 1st 2013 we could start paying the educative-therapeutic weekly sessions for Àlex in Sitges. We continue paying them with the money we have been raising all these months, doing a second party in the Igualada fair space and setting our stand in fairs, markets, gatherings, etc. wherever we are allowed to do so.

We haven’t had to stop Àlex’s sessions. We can see how Àlex is making progress, he is improving and he is also starting to say he wants to do that, and asking for it. This progress is amazing, he is growing up and he wants to grow up, this has no price.

We continue working hard and now we feel optimists. We keep moving forward and hoping that everything we have worked for start at last.

When in a situation like ours, a particular case like many and many others, you yourself have to look for solutions just to keep going, keep fighting, you can never give up. Because the thing you are fighting for is always worthy. If the goal is worthy and the means used are honest. All the more when it is for a Son you are fighting for. Just like us.

We want to thank Marc Mañé who has been with us since the beginning, helping us diffusing the 2.0 initiative, creating the bloc/site, bringing the Nash Sasha Alex Facebook page up, all concerning to communication online, letting us dispose of his knowledge to continue with the initiative. We also want to thank Marga Xaus who works continueously to enhace and promote our initiative joining us in the events and being creative in all involving the spread of the initiative. Without him everything would be harder and nothing would be the same.

Finally, we want to thanks Isabel Lacleta, Rufino García and Marta Ferrer, who have accompanied us in our outings.

Without your help this would not have been possible!

Thank you very much to all those who with their collaboration are doing all this possible!

A look at the world of autism

PatriciaAlex

Close your eyes and imagine a huge box full of crayons of different colours… from white to black, with all the different tones and textures… This is the world of Autism Spectrum Disorder (ASD), with all its variety and differences.

Autism is a development disorder that appears from childhood. Its characteristics are: impaired social interaction, difficulties in verbal and nonverbal communication and restricted and repetitive interests and activities. About 3 to 5 children out of 10,000 are autistic. Boys are affected 3 to 4 times more than girls but often autism is more severe in girls than in boys. Autism is more than a problem affecting one individual; it is a disability disorder that affects the whole family. The treatment needed for children with autism is very demanding for the family, both, emotionally and economically. Parents of children with autism are exposed to multiple challenges that have a hard impact in their most direct environment.

There is no cure for autism, but therapies and conductual interventions are designed to improve the main symptoms of autism and may allow a substantial improvement. All professionals agree on the fact that the sooner intervention takes place the better. The family counselling for parents and siblings of children with autism (as well as in school) is as important as the treatment given to the children affected by this disorder.

The fact that a child has autism, does not mean that he or she is autistic. In the same way that a person who suffers a bipolar disorder does not mean that she or he is bipolar. What I mean to say is that they are children like the rest of children. They want to smile, share and to be understood. Any child can learn. What we need to do is to find the right way to teach them. That is our job and it is every professional’s goal. We have to fight for these children to have a good quality of life with their families and all people around them, for them to be happy.

 

Patricia Duran
Escala Iris Director – Centre for Child development
www.escalairis.com
October 5th, 2013